Taking control
Do you feel as though you have less control over your day or your health? Perhaps there are lots of appointments, advice, restrictions or people offering their input. That can be helpful, but it can also be overwhelming at times. You’d like to stay in the driving seat, even if you need help. Staying in control does not mean you have to do everything on your own. It means you remain involved in decisions that affect your life. What is important to you? What do you want to continue doing yourself? What do you need help with? As your health changes, these are important questions.
What do you notice?
Having less control can feel as though the day is just happening to you. You mainly react to what needs to be done, rather than setting the direction yourself.
You may, for example, notice that:
- you have a lot of appointments and find it hard to keep track of them;
- you are not sure who is responsible for what;
- others can sort out a lot for you;
- you find it difficult to express your wishes;
- if you feel dependent;
- if you feel that you are lagging behind;
- you have little time for the things that matter to you;
- if you are unsure which type of help is appropriate;
- you are uncertain about the future.
Sometimes you may feel that your symptoms are controlling everything. In such cases, it can help to take a fresh look at the things you can influence.
