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  • What does your health insurer cover?

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  • What do you notice?
  • What might be the reason for this?
  • What can you do yourself?
  • When is it advisable to seek help?
  • How Rondom can help
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Preparing for the future with permanent disabilities

Have you been told that certain limitations are likely to remain? Or have you noticed yourself that your health is no longer what it used to be? This can stir up a range of emotions: sadness, uncertainty, anger or fear of what lies ahead. At the same time, it can help to prepare for the future step by step. Preparing for the future does not mean giving up. It means looking ahead and making choices that make your life easier, safer and more manageable. Especially when limitations remain, it is important to stay in control.

Preparing for the future
What do you notice?

Long-term disabilities can affect many aspects of your life.

You may, for example, notice that:

  • you are worried about the future;
  • daily tasks continue to take more effort;
  • you are unsure about work, housing or transport;
  • you need help, but are finding it difficult to do so;
  • you are afraid of losing your independence;
  • you feel sad about what is no longer possible;
  • you put off practical matters;
  • if you are unsure which changes are required;
  • you find it difficult to make choices.

Sometimes it is too much to take in all at once. In that case, it helps to look at each part individually to see what needs attention at the moment.

What might be the reason for this?

Related topics

  • Dealing with dependency

    Do you find it difficult to be more dependent on others? Perhaps you need help with transport, housework, personal care, paperwork or appointments. This can have a big impact on you. You may feel grateful for the help, whilst at the same time feeling sad or angry that you need it. Dependence affects your independence, freedom and self-esteem. It is understandable if you struggle with this. Needing help does not mean you can no longer do anything for yourself. It is about working together to find a balance between receiving support and retaining control over your own life.

  • Drawing up a daily schedule

Was this information helpful?

Permanent limitations can arise as a result of illness, injury, pain, fatigue, ageing or a condition from which one does not fully recover. This affects what is achievable in terms of work, household tasks, living arrangements, transport or social activities.

Uncertainty also plays a part. You may not know how quickly things will change or what help you might need later on. This can lead to you putting off making decisions.

Furthermore, coming to terms with the situation can take time. It can be difficult to think ahead in practical terms if you are still emotionally dealing with a loss.

What can you do yourself?

It helps to look at the future in concrete, step-by-step terms.

For example, you could:

  • write down which activities are important to you;
  • to identify which tasks remain difficult;
  • thinking about housing, work, transport and support;
  • exploring assistive devices or adaptations in good time;
  • discuss what you would like to continue doing yourself;
  • involve your network in practical matters;
  • ask for information from the local authority or healthcare provider;
  • make choices for the coming months rather than trying to do everything at once.

Planning ahead often brings peace of mind. It makes it clear what you can sort out now and what can be dealt with later.

When is it advisable to seek help?

It is wise to seek help if you are unsure what choices to make or if worries about the future are causing you a great deal of stress. Advice is also useful if you are putting off making practical adjustments whilst daily life is becoming more difficult.

Please contact your GP if you are feeling down, feeling stuck or are no longer able to function properly due to worries about the future.

How Rondom can help

Together, we will look at what long-term limitations mean for your daily life. In doing so, we will consider your home, work, energy levels, assistive devices, mobility, social activities and your personal wishes.

A occupational therapist can help to prepare practical adjustments, aids and a daily routine. A physiotherapist can support you with strength, balance and movement within your capabilities. A lifestyle coach can help with recovery, routine and healthy habits. In times of grief, uncertainty or acceptance, it can psychological support should be appropriate.

Together, we will look for ways to help you prepare better for the future and retain as much control as possible.

Do you find that your day is turning out differently to how you’d planned? Perhaps you’re planning too much, forgetting to take breaks, or not getting round to what’s important. Drawing up a daily schedule can help you get a better grip on things, especially if your energy is limited or if your symptoms fluctuate. A good daily plan isn’t just a long list of tasks. It’s a realistic balance between doing, resting, taking care of yourself, working and relaxing. It’s precisely by planning in rest that you often have more energy left for what really matters.

  • Making independent choices

    Have you noticed that making decisions for yourself is becoming more difficult? Perhaps you find yourself hesitating more often than before. Or you may notice that others are quicker to decide for you what is sensible. This may be well-intentioned, but it can also feel as though you have less control over your own life. Making independent choices isn’t just about big decisions. It’s also about everyday matters. What will you and won’t you do today? What help will you accept? Which activities suit your energy levels? If your health or capacity changes, these kinds of choices can suddenly feel much more burdensome.

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